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A prospective analysis of the long-term impact of the COVID-19 pandemic on well-being and health care among children with a chronic condition and their families

  • Background There is consistent evidence that the COVID-19 pandemic is associated with an increased psychosocial burden on children and adolescents and their parents. Relatively little is known about its particular impact on high-risk groups with chronic physical health conditions (CCs). Therefore, the primary aim of the study is to analyze the multiple impacts on health care and psychosocial well-being on these children and adolescents and their parents. Methods We will implement a two-stage approach. In the first step, parents and their underage children from three German patient registries for diabetes, obesity, and rheumatic diseases, are invited to fill out short questionnaires including questions about corona-specific stressors, the health care situation, and psychosocial well-being. In the next step, a more comprehensive, in-depth online survey is carried out in a smaller subsample. Discussion The study will provide insights into the multiple longer-term stressors during the COVID-19 pandemic in families with a childBackground There is consistent evidence that the COVID-19 pandemic is associated with an increased psychosocial burden on children and adolescents and their parents. Relatively little is known about its particular impact on high-risk groups with chronic physical health conditions (CCs). Therefore, the primary aim of the study is to analyze the multiple impacts on health care and psychosocial well-being on these children and adolescents and their parents. Methods We will implement a two-stage approach. In the first step, parents and their underage children from three German patient registries for diabetes, obesity, and rheumatic diseases, are invited to fill out short questionnaires including questions about corona-specific stressors, the health care situation, and psychosocial well-being. In the next step, a more comprehensive, in-depth online survey is carried out in a smaller subsample. Discussion The study will provide insights into the multiple longer-term stressors during the COVID-19 pandemic in families with a child with a CC. The simultaneous consideration of medical and psycho-social endpoints will help to gain a deeper understanding of the complex interactions affecting family functioning, psychological well-being, and health care delivery.show moreshow less

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Author details:Petra WarschburgerORCiDGND, Clemens KamrathORCiDGND, Stefanie LanzingerORCiDGND, Claudia SenglerORCiDGND, Susanna WiegandORCiDGND, Julia Marlen GöldelORCiD, Susann Weihrauch-BlüherORCiD, Reinhard HollORCiD, Kirsten MindenORCiDGND
DOI:https://doi.org/10.1186/s12887-023-03912-7
ISSN:1471-2431
Pubmed ID:https://pubmed.ncbi.nlm.nih.gov/36949465
Title of parent work (English):BMC pediatrics
Subtitle (English):a study protocol of the KICK-COVID study
Publisher:BioMed Central
Place of publishing:London
Publication type:Article
Language:English
Date of first publication:2023/03/22
Publication year:2023
Release date:2024/06/24
Tag:COVID-19; Children and adolescents; Chronic conditions; Diabetes; Obesity; Parents; Psychosocial strain; Rheumatic diseases; Risk perception
Volume:23
Issue:1
Article number:130
Number of pages:15
Organizational units:Humanwissenschaftliche Fakultät / Strukturbereich Kognitionswissenschaften / Department Psychologie
DDC classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Peer review:Referiert
Grantor:Publikationsfonds der Universität Potsdam
Publishing method:Open Access / Gold Open-Access
DOAJ gelistet
License (German):License LogoCC-BY - Namensnennung 4.0 International
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