Referiert
Refine
Has Fulltext
- no (5)
Document Type
- Article (5)
Language
- English (5)
Is part of the Bibliography
- yes (5) (remove)
Institute
Background Bringing up children with atopic dermatitis (AD) is widely perceived as being stressful because parenting demands considerable time and energy. There have been only a few studies to assess the extent of problems experienced by the parents. Objective To assess the psychosocial well-being of parents caring for a young child with AD and to examine the relationship between parental quality of life and disease-related and sociodemographic variables. Methods One hundred and eighty-seven parents of young children with AD attending an inpatient rehabilitation clinic participated in the study. At admission, parents completed a set of questionnaires (assessing health-related quality of life, coping with the disease, family functioning). Dermatologists assessed disease severity using the severity scoring of AD index (SCORAD). Results In general, parents cope well with their situation. Compared with normal values, high rates of psychological distress were observed in a subsample of parents of children with AD. Parents of children with a higher severity of disease reported a significantly higher impact on family functioning, a greater financial burden and a higher level of disease management. Parental disease management could be predicted by the familial situation, their personal well-being and the severity of disease of their child. Differences attributed to their child's gender or age were not observed. Conclusions Childhood AD has a profound impact on the emotional and social well-being of many of the parents. The results underline the importance of psychological treatment approaches designed to increase parental well-being and ability to cope with stress and social strain
Obesity is associated with psychosocial strain and a lower quality of life. Health-related quality of life is an important indicator for evaluating intervention treatments. However, German disease-specific quality of life instruments are lacking. In this paper the development and psychometric results of a weight-specific quality of life questionnaire for overweight and obese children and adolescents (GQ-LQ-KJ) is described. To determine the psychometric properties of the instrument 448 children and adolescents treated for over-weight or obesity took part in the study. They filled in the quality of life questionnaire, the German version of the STAI for children, a body image avoidance questionnaire (BIAQ) and several subscales of a generic quality of life questionnaire, the Child Health Questionnaire (CHQ). Results support the item and scale properties. Furthermore we were able to form two economic parallel versions suitable for further intervention studies