TY  - JOUR
A1  - Warschburger, Petra
A1  - Kamrath, Clemens
A1  - Lanzinger, Stefanie
A1  - Sengler, Claudia
A1  - Wiegand, Susanna
A1  - Göldel, Julia Marlen
A1  - Weihrauch-Blüher, Susann
A1  - Holl, Reinhard
A1  - Minden, Kirsten
T1  - A prospective analysis of the long-term impact of the COVID-19 pandemic on well-being and health care among children with a chronic condition and their families
T2  - BMC pediatrics
N2  - Background 
There is consistent evidence that the COVID-19 pandemic is associated with an increased psychosocial burden on children and adolescents and their parents. Relatively little is known about its particular impact on high-risk groups with chronic physical health conditions (CCs). Therefore, the primary aim of the study is to analyze the multiple impacts on health care and psychosocial well-being on these children and adolescents and their parents.

Methods
We will implement a two-stage approach. In the first step, parents and their underage children from three German patient registries for diabetes, obesity, and rheumatic diseases, are invited to fill out short questionnaires including questions about corona-specific stressors, the health care situation, and psychosocial well-being. In the next step, a more comprehensive, in-depth online survey is carried out in a smaller subsample.

Discussion
The study will provide insights into the multiple longer-term stressors during the COVID-19 pandemic in families with a child with a CC. The simultaneous consideration of medical and psycho-social endpoints will help to gain a deeper understanding of the complex interactions affecting family functioning, psychological well-being, and health care delivery.
KW  - Chronic conditions
KW  - COVID-19
KW  - Children and adolescents
KW  - Parents
KW  - Risk perception
KW  - Psychosocial strain
KW  - Diabetes
KW  - Rheumatic diseases
KW  - Obesity
Y1  - 2023
UR  - https://publishup.uni-potsdam.de/frontdoor/index/index/docId/64330
SN  - 1471-2431
VL  - 23
IS  - 1
PB  - BioMed Central
CY  - London
ER  -