@article{WarschburgerKamrathLanzingeretal.2023,
  author    = {Warschburger, Petra and Kamrath, Clemens and Lanzinger, Stefanie and Sengler, Claudia and Wiegand, Susanna and G{\"o}ldel, Julia Marlen and Weihrauch-Bl{\"u}her, Susann and Holl, Reinhard and Minden, Kirsten},
  title     = {A prospective analysis of the long-term impact of the COVID-19 pandemic on well-being and health care among children with a chronic condition and their families},
  series = {BMC pediatrics},
  volume    = {23},
  journal   = {BMC pediatrics},
  number    = {1},
  publisher = {BioMed Central},
  address   = {London},
  issn      = {1471-2431},
  doi       = {10.1186/s12887-023-03912-7},
  pages     = {15},
  year      = {2023},
  abstract  = {Background There is consistent evidence that the COVID-19 pandemic is associated with an increased psychosocial burden on children and adolescents and their parents. Relatively little is known about its particular impact on high-risk groups with chronic physical health conditions (CCs). Therefore, the primary aim of the study is to analyze the multiple impacts on health care and psychosocial well-being on these children and adolescents and their parents. Methods We will implement a two-stage approach. In the first step, parents and their underage children from three German patient registries for diabetes, obesity, and rheumatic diseases, are invited to fill out short questionnaires including questions about corona-specific stressors, the health care situation, and psychosocial well-being. In the next step, a more comprehensive, in-depth online survey is carried out in a smaller subsample. Discussion The study will provide insights into the multiple longer-term stressors during the COVID-19 pandemic in families with a child with a CC. The simultaneous consideration of medical and psycho-social endpoints will help to gain a deeper understanding of the complex interactions affecting family functioning, psychological well-being, and health care delivery.},
  language  = {en}
}
@article{CalvanoWarschburger2018,
  author    = {Calvano, Claudia and Warschburger, Petra},
  title     = {Quality of life among parents seeking treatment for their child's functional abdominal pain},
  series = {Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation},
  volume    = {27},
  journal   = {Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation},
  number    = {10},
  publisher = {Springer},
  address   = {Dordrecht},
  issn      = {0962-9343},
  doi       = {10.1007/s11136-018-1916-2},
  pages     = {2557 -- 2570},
  year      = {2018},
  abstract  = {Purpose: Dealing with a child who suffers from functional abdominal pain (FAP) is a major challenge for the child's parents. However, little is known about the quality of life (QoL) of this group of parents. Therefore, this cross-sectional study aimed to provide a comprehensive analysis of parental QoL among parents seeking treatment for their child's abdominal pain. Methods: 133 parents of 7-13-year-old children diagnosed with FAP reported on their health-related QoL (HRQoL), as assessed by the SF-12, and on caregiver-related QoL, as assessed by two CHQ-PF50 scales (emotional impact, time impact). T tests were used to compare the parents' scores on these measures with reference scores. Subgroups which were at risk of impairment were defined by cut-off scores. Determinants of parental QoL were identified by hierarchical regression analyses. Results: While the parents showed significantly poorer mental health compared to population-based reference samples (d = 0.33-0.58), their physical health did not differ. However, parents were severely strained with respect to the time impact and emotional impact of their child's health (d = 0.33-1.58). While 12.7-27.9\% of the parents were at risk of poor HRQoL, 60.6-70.1\% were highly strained due to the demands of their role as caregivers. Physical and mental health were best explained by parents' psychiatric symptoms, while parents' perception of their child's impairment additionally determined the high time and emotional impact. Conclusions: Physical HRQoL is not impaired in the majority of parents seeking treatment for their child's functional abdominal pain. However, the time demands and worries due to the child's pain deserve specific attention. Psychosocial interventions for a child's FAP should include information provided to the parents about coping with time constraints and emotional impact. Further prospective studies are warranted.},
  language  = {en}
}
@article{WarschburgerKuhne2014,
  author    = {Warschburger, Petra and Kuhne, Daniela},
  title     = {Psychosocial determinants of quality of life in parents of obese children seeking inpatient treatment},
  series = {Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation},
  volume    = {23},
  journal   = {Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation},
  number    = {7},
  publisher = {Springer},
  address   = {Dordrecht},
  issn      = {0962-9343},
  doi       = {10.1007/s11136-014-0659-y},
  pages     = {1985 -- 1995},
  year      = {2014},
  abstract  = {To examine and identify predictors of parental health-related quality of life (HRQoL) in a sample of obese and very obese children participating in an inpatient program for treating obesity.},
  language  = {en}
}